Monday, January 14, 2008

Update


This morning after a good nights sleep might be a good time to provide more information. I pray that God would guide me in communication.

Aaron was first diagnosed with Steven-Johnson syndrome (SJS) which is a little-known disorder which is an extreme allergic reaction usually to a drug. Since being in the hospital they have upgraded his condition to TEN - which is a detachment of more than 30% body surface area (BSA). There is information all over the Internet about both of these conditions so I won't go into any more of a description about the specifics.

This all started when we were all up north over the Christmas break. Aaron developed a sore throat the day before New Years Eve. By NYE he was really hurting so he went to a ready med. type place in Harbor Springs to be checked out. They determined that he had strep throat and gave him a long lasting injection of penicillin and sent him home. Aaron then packed up Taylor, Riley and Aidan and headed home.

He started to feel better for a while but then went down hill again to the point where his local Dr. sent us to the hospital last Wednesday. Miraculously, and I mean really miraculously, the ER Dr. at Midland hospital almost immediately diagnosed Aaron with SJS. We know that God lead us to Midland hospital via his faith filled local Dr. to the ER Dr. in Midland because the Midland ER Dr. had a best friend who had been afflicted with SJS............the chances of having the diagnosis so early are about 1,000,000 to 1 because this is such a rare condition.

With in minutes things were set in motion to locate the best place for treatment which also miraculously came together by the grace of God. Every hospital that had a burn unit around the whole Mid-West was full to capacity and could not take him. Finally Detroit Receiving said that they would take him. As it turns out this is absolutely the best place that he could have come to. They have every specialist needed to support recovery right there under one Detroit Medical Center location.

We are convinced that our primary Dr. lives at the hospital, he has been so diligent. There are dermatologists, eye Doctors and every other kind of support that we need. A friend of our family is on the board of DMC and has provided the family with everything that they can to ease our stay. No one can say for sure and it is a one day at a time situation but we are being given reason to believe that though this will be a long drawn out journey, Aaron can come out of this intact. They are ok with the treatment they are giving him for his vision and working very hard to prevent infection of the skin.

We are so grateful to all of you for your prayers, cards and well wishes and are firmly convinced that your prayers and faith are integral in Aaron's journey. Angie read all of your e-mails to him yesterday so he knows you are all pulling for him. We will take a new batch of them into him today. So many of you have asked what you can do and we really want to ask you all to continue praying at this point.

I am confident that Jesus has my little lamb in the palm of his hands.

Thank you and we love you all with all our hearts.
Hugs and blessings,
Sue and family

12 comments:

  1. Yes, God does have him in the palm of His hands. Will continue to pray. God bless.

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  2. Please know that he and your entire family (and his caregives, too) are in my prayers.

    Much love to you~

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  3. Sue,
    Isn't our all knowing God so gracious to know ahead of time just what we will need and work things out for our good....

    I do continue to pray for Aaron and for his family to give you peace, rest and patience. The tincture of time heals so much.....God Bless..Betty

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  4. Hi Sue, we continue to pray for Aarons receovery and for you and your family too. This must be so incredibly hard we just cannot imagine. Keep strong. Jenn and Jacqui

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  5. You're in my thoughts and prayers also.

    Anna :)

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  6. Anonymous8:27 AM

    Hello,

    Checking in on you..so glad to hear that there is even more of an improvement today.

    I have never heard of SJS..there are so many things out there huh ??

    You are so lucky to have such wonderful support and of course bloggerland is amazing !!!

    God Bless
    Kathy :)

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  7. Aaron is certainly in my prayers. Our pastor's son (about 13 at the time) had SJS about ten years ago. He almost died, but has no ill effects now. Cast all your care on Him, because He cares for you!

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  8. Anonymous12:27 PM

    Just wanted everyone to know that we are praying every night!! Our thoughts and love are with arron every day please pass on that we love him very much, and will be checking on his recovery.
    Love , Cara, Mom, Papa and family

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  9. Dear Sue,
    I hope you can continue to find strength in your family, friends, and faith. I will continue to keep your dear son in my thoughts and prayers...

    Take care,
    Linda
    xoxo

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  10. sue,
    my dad just informed me of aaron's sudden situation. my thoughts and prayers go out to you and your family. i will be thinking of him and praying for him everyday. i wish him a successful and healthy recovery. kindest regards, doug labelle II

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  11. Sue,
    I'm new here, just found you, and started reading about Aaron. Blessings for a smooth recovery. Please know he is in God's hands. I will be praying for your son, and for your family.
    Rose

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  12. Sue, I'm so sorry to hear about Aaron. Many prayers and thoughts, from my family to yours.

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Thanks for leaving a comment. I so appreciate it when you take the time to leave a bit of encouragement.
Hugs,
Sue