Thursday, December 23, 2010
It has been almost three years now since my oldest son Aaron developed Stevens-Johnson Syndrome and its more insidious form called TENS. The syndrome manifests from an allergic reaction to over-the-counter or prescription drugs and is deadly and has life long consequences for those that survive.
Early diagnosis of Stevens-Johnson Syndrome (SJS) is the key to survival of this hideous condition. Because it is rare (or so they say) very few health care providers are aware that it exists and many people afflicted die going undiagnosed.
I am taking a few minutes here to post this public service announcement to advocate for better education in the health care profession for SJS awareness. I am also advocating for personal awareness. If you or a loved one develops any kind of a rash that involves blistering, especially around the area of the lips, mouth, and throat, please, please, please seek medical attention immediately and raise the issue of SJS with your Doctor and ask them to do an Internet search for information about it and then follow up with it on your own and find another Doctor if the Doctor you are seeing does not.
Many of you long time readers of Life At Home will remember Aaron's battle with SJS. For new readers or any one coming here for information I refer you to my side bar categories list where if you scroll down you will find a category labeled Stevens-Johnson Syndrome. There are 49 entries in the category so I would suggest you scroll to the beginning to read through the progression of Aaron's case.
There is not much technical information in the blog posts, they are mostly a Mother's heart being poured out for support while going through the ordeal of a sick child.
For more technical information about SJS for any one afflicted with it, or that has a loved one experiencing it, I would direct you to the SJS website but I issue this warning that it is not a pleasant subject to delve into right before Christmas and the pictures shown there are beyond (though accurate) graphic and horrifying so enter the area with pictures with caution.
Links are provided on the SJS website for those interested in donating to raise awareness. Aaron and I thank you in advance for anything you can give.
Wednesday, December 22, 2010
Hopefully you are all keeping your cool during these last few days before Christmas. We had our family celebration here a couple of weeks ago so the bulk of my shopping, wrapping, cooking, cleaning, and hostessing are complete. You would think that this week would have gone smoothly, and it has for the most part, but yesterday I felt like I might be loosing it with papers piled a mile high on my desk and the ghosts of things undone all came rushing in at once.
I was on the phone most of the day with our insurance prescription provider, then with Boyne Highlands and Dad trying to get rooms reserved for the overflow up north next week. Stacks of menu ideas, grocery & to do lists, year end charitable giving lists, graduation and wedding cards to get in the mail (added anxiety about being so negligent), Christmas pictures to download and forward were all piling up. Hurt feelings soothed and confusion clarified.
This morning though I woke up with a new attitude. These smiling faces greeted me on my computer and reminded me that all is right with the world even if I don't get every thing done.
I am so grateful for the grace that my family and friends give me, and we give each other, year in and year out for my, and their, short comings. Isn't that one of the best gifts we can share with each other?
Blessings and grace I share with You my kind reader. As you go about your day may the peace of the Lord be with you. Smiles all around!
Pictures of our Grand Children
Monday, December 20, 2010
Tonight we are going to visit one of America's Castles. Meadow Brook Hall is located on the property of Oakland University in Rochester, Michigan. They open the house every year for their main fundraiser, a Holiday Walk.
Here is a closer picture of the enterance.
The picture above is of the Banquet Hall.
Here is the fireplace in the Main Hall beautifully decorated for the Holiday Walk.
This is the living room fireplace.
I love the paneling in Mrs. Wilson's Study
Meadow Brook Hall is a place for the community and its visitors to be entertained, educated and inspired by history. As Meadow Brook Hall is fully self-funded, it relies on events such as the annual Holiday Walk for its preservation and interpretation.
You can read about the history of this interesting house and view more pictures at the link below.
Pictures courtesy of Meadow Brook Hall website
Friday, December 17, 2010
Well the neighbors may have questioned the sight of me outside this morning in my robe and PJ's but I wanted to get this picture for you so it was worth it....
One of my favorite things is having our dry cleaning picked up and delivered. Every week I hang the cute yellow bag the cleaners provides us on the front door and in a couple of days they bring us beautifully laundered and pressed shirts and pants. The best part of this small luxury is that they provide this service for FREE....
Thank you Bella Cleaners of Shelby Twp., Michigan. If you are in this area you might want to give them a try or ask the dry cleaner that you are using if they provide this luxurious service. It really is one of my favorite things.
Thursday, December 16, 2010
Wednesday, December 15, 2010
I am ready to fly off to any where that is warm. From the looks of the weather maps that might have to be somewhere outside of the US.
We celebrated Christmas here at our house last weekend. Today my plan was to head up north for a party with my girl friends but the black ice covering the roads is keeping me home ;( Hopefully by Christmas Eve the weather will be better so we can make it home for the final family Christmas celebration.
During the spring, summer, and fall I don't have any problem jumping in the car and traveling all over the state. When Winter hits I get much more cautious. The least bit of potential for slippery roads keeps me house bound. It is a good thing I love ~ Life At Home ~.
Well, since I have no plans to jet off to warmer weather any time soon, and I have to miss all my girly friends, I better go find a project to get busy with around here. One can only watch so many episodes of The Real Housewives and I think I have reached my saturation level.
Monday, December 13, 2010
Sunday, December 12, 2010
Monday, December 06, 2010
It has been so long since I have blogged it is hard to remember how. Anyway, how is everyone? Thank you for the kind expressions of sympathy. This is a difficult time of year for those of us that have lost loved ones and my heart goes out to all who are dealing with their losses.
Friday we have the family coming to our house to celebrate Christmas. This year we got one of the new pre-lit, slim Christmas trees that they had at Costco. It will be our only decoration this year. With Thanksgiving close to the end of November, an early celebration to accommodate family commitments, milestone birthdays to commemorate and my general funk it will have to do.
Life At Home, or any where for that matter, always has its ups and downs. The second half of this year has been weighted more to the down side but I look forward to a new year. With all the problems of last year filed away as life being lived, lessons learn, and memories saved we all move on. We make the best of what we have left with the ones we love and carry on.
Blessing and much love,